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Parents’ Perceptions of the Impact of their Chronic Illness or Disability on their Functioning as Parents and on their Relationships with their Children

This article reports on an exploratory study. Seventeen parents, self-reporting a chronic illness or disability, responded on the Internet to a questionnaire developed from grounded theory techniques. Their perceptions were collected both on their ability to parent and on their relationships with their children. Follow-up interviews were conducted with 6 participants by telephone. Overarching themes that emerged were that with the chronic illness or disability, (a) there occurred more negative than positive changes; (b) reduced personal power occurred in several contexts, including in family role changes; (c) parents worry about family coping; and (d) there is more interest in family counseling than in support groups. Implications for Internet support groups, psychoeducation on the Internet, and future research are discussed.

The Family Journal, Vol. 10, No. 3, 300-307 (2002)
DOI: 10.1177/10680702010003006


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